Gluten Free Subsidy Cards and Prescriptions: Changing Support in the UK

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Managing a gluten free diet can be costly, and support across the UK is changing. Wales has introduced a new prepaid gluten free subsidy card that offers greater choice, while prescription access is greatly declining. This blog explains the subsidy card and gives an overview on gluten free prescriptions across the UK

Last updated 2 weeks ago

Published 2 weeks ago

Gluten Free Subsidy Cards and Prescriptions: Changing Support in the UK

Wales Subsidy Card
Gluten free on prescription has been on the decline for a long time now all across the UK but Wales are introducing a new pre-paid subsidy card to Coeliacs across the country to help with the cost of gluten free food products.

This new scheme in a UK first and will be an alternative to gluten free prescriptions, it's not due to roll out until autumn, and only in Wales at the moment. Those eligible will be given the choice of having the pre-paid card or prescriptions. When it does roll out, those that choose this method will get the card topped up every 3 months.

The card has been on trial for the last 6 years in certain parts of Wales and now it has been decided to roll it out to all Coeliacs across the region.

During the pilot, participants received £14 per month on their prepaid card. While that amount might only stretch to around four gluten free loaves, and certainly doesn’t cover the full cost of a gluten free diet, that’s not its purpose. The card is intended as a subsidy, not a full replacement, designed to help bridge the price gap between gluten containing and gluten free alternatives. For example, if a standard Warburtons loaf costs £1.40 and the gluten free version is £3.50, the card helps offset that £2.10 difference, making gluten free living just a little more affordable.

If you are in Wales, then you maybe wondering what the advantages of the card are -

  • Can use in any mainstream supermarket over a wide variety of gluten free products, just not the limited range of the prescriptions
  • No need to manage a repeat prescription
  • Supports the local economy a bit more
On the other side though, prescriptions in Wales are free - so it will come down to if you prefer choice or free bread/flour.

Anyone entitled will have the option to choose to have prescriptions instead if you wish. With those you get a set amount of units a month to use generally on gluten free bread or flour, some areas offer other things but the majority that do offer prescriptions it is set to these.

Gluten Free on Prescription
If course if you aren't in Wales, the UK does have gluten free prescriptions, but it is very much a postcode lottery of whether your ICB still offers it.

Here's a bit of info about the gluten free prescriptions.

Diagnosed Coeliac
To claim the prescriptions you have to be medically diagnosed as Coeliac, if you are gluten intolerant, came back negative in testing, refused testing etc, you are not eligible.

Gluten free is prescribed in units
The amount of prescribed units vary but in England it is usually 14 units for females and 18 for males aged 19-59. It is different for kids, pregnant ladies and those 60+

Each unit roughly equals one loaf of bread or 500g of flour mix. However, each different type of product counts as a separate prescription charge.

So, for example:

  • If you use 8 units for 8 loaves of bread and 6 units for 6 bags of flour, that’s two different product types – meaning you’d pay for 2 prescriptions.
  • If you choose 4 loaves, 4 baguettes (a different product), and 6 flour mixes, that’s three different types – so 3 prescription charges would apply.
It's a Postcode lottery It really is pot luck if you can get prescriptions in your area if you are in England. It used to be UK wide but over the years more and more of the ICB's have taken gluten free prescriptions away.

Scotland still offer gluten free on prescription everywhere, as do Northern Ireland (to anyone who qualifies) and Wales (though some parts are just on the subsidy card trial at the moment)

In England it can still be found in some areas such as parts of Cumbria, Newcastle and West Sussex but it is very hit and miss, leaning more towards miss.

Cheshire and Merseyside ICB recently decided to end gluten free prescriptions following Hampshire & Isle of Wight, West Yorkshire, and Leicester, Leicestershire & Rutland regions who all dropped their gluten free prescriptions within the last 12 months. Kent is the only region to rule to remove prescriptions and then reintroduce them. It is super hit and miss all over the country, it is worth checking with your GP or pharmacy to see if gluten free on prescription is available in your area to help you out with the cost of living.

Will the Subsidy Card Roll Out Further?
Time will tell. There have been many rumours over the years about vouchers or cards for coeliacs within England but so far they have yet to come to fruition. With Wales now rolling it out after a successful trial, I think it is a wait and see what happens.

Something is needed to replace the declining prescriptions, in what form that will be, I don't know, but I am sure we will find out eventually!

Alison Peters
Alison Peters has been Coeliac since June 2014 and launched Coeliac Sanctuary in August of that year, and since then has aimed to provide a one stop shop for Coeliacs, from blogs, to recipes, eating out guide and online shop.

Your Comments

Yes this is an ongoing problem diagnosis in 2013 had g/f prescription then it all stopped 2 years later. I took am a pensioner on low income. I would be grateful for just the flours you can buy from chemist at the price of a private prescription . Or online from the manufacturer Jevela you buy 3 please of flours 500 GM for £21 plus postage that is expensive. Have not bought for few years as I just can't afford to. Thier flour makes better cakes biscuits Yorkshire's ect and the doves farm is not to bad but cost less. You get what you pay for.. I recently had cancer major surgery ect ! Asked Dr for help but big NO!!! I live in Essex..
Jacqui Robinson1 week ago
Hi, I suffer from a mild form of stomach problems, but my main problem is dermatitis herpetiformis. I've had this for nearly 20 years and a pensioner the cost of anything half decent is prohibitive. Eating out doesn't seem to have improved in all these years. Staff in cafes, restaurants etc are still not trained properly. I try to explain to people that this is an illness not a lifestyle choice, as vegans and vegetarians choose to live.
Chris Crowley1 week ago
I live in Wales. A subsidy card would be potentially helpful, reducing the need to go to the pharmacy and able to cover a wider range of products, but at £14/month is an inadequate amount. I plan to stick with getting my g/f bread (6 packs of 4 rolls), fibre flakes (4 packs) and pasta (1 pack) per month on prescription as that's free in Wales and I would not be able to get equivalent bread, cereal and pasta for £14/month.
Rebecca1 week ago
This scheme should be available to all the UK not just Wales. It would be very helpful for me being a Coeliac. I don’t get any help with a prescription for gluten free bread.
Joyce Lambord1 week ago
I'm fortunate as I am Anne to get my bread of prescription. I live in Manchester . I'm retired and was clinically diagnosed with Coeliac disease in 1995.. I am also lactose intolerant abd cannot tolerate oats and soya . Why do so many supermarkets include oats and soya in their recipes in cajes and biscuits when corn/rice could be used ? I make my own cakes and biscuits and prefer to do this as I don't have to tolerate Al the sugar used in gluten free goods and of course no additives . I appreciate because I'm retired I have the time to do this whereas people with young families and employed don't have this luxury . Saying that I've made my own cakes and treats for many years . . I've recently found a great cake recipe that uses natural sweetners in apples, and Bananas instead if using sugar . I use ground almonds instead of oats and being lactose intolerant for over 5 years use lactose free milk. I feel that everyone with clinically diagnosed coeliac disease should be allowed to be able to get their bread on prescription. My twin sister who lives in West Yorkshire hasn't been able to get anything on prescription for many years . Coeliac disease is just that , it's not a choice.
Anne Bell1 week ago

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